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[原创]求助我儿大血管转位、室间隔缺损、室水平双向分流、肺动脉狭窄

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发表于 2006-11-7 04:08:02 | 显示全部楼层 |阅读模式
<p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">本人家住南京,小儿出生仅</span><span lang="EN-US"><font face="Times New Roman">14</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">个小时就发现严重的先心。目前已</span><span lang="EN-US"><font face="Times New Roman">84</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">天,体重</span><font face="Times New Roman"><chmetcnv wst="on" tcsc="0" numbertype="1" negative="False" hasspace="False" sourcevalue="5.5" unitname="kg"><span lang="EN-US">5.5KG</span></chmetcnv><span lang="EN-US">.</span></font><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">现有在南京儿童医院</span><chsdate wst="on" isrocdate="False" islunardate="False" day="21" month="9" year="2006"><span lang="EN-US"><font face="Times New Roman">9</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">月</span><span lang="EN-US"><font face="Times New Roman">21</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">日</span></chsdate><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">心脏超声报告:</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">超声所见:</span><span lang="EN-US"><font face="Times New Roman">2-DE:</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">心房正位,心室右襻,左侧房室间为二尖瓣,右侧房室间为三尖瓣,主动脉、肺动脉呈右前左后位走行,前者增宽,发自右室,后者狭窄(含瓣膜、瓣下),发自左室。室间隔上部于双干下至肌部见</span><chmetcnv wst="on" tcsc="0" numbertype="1" negative="False" hasspace="False" sourcevalue="9" unitname="mm"><span lang="EN-US"><font face="Times New Roman">9mm</font></span></chmetcnv><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">回声中断,房隔连续。主动脉弓未见狭窄。</span><span lang="EN-US"><font face="Times New Roman">CDFI</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">:室水平见双向分流,肺动脉正向血流速度压差稍增大:</span><font face="Times New Roman"><chmetcnv wst="on" tcsc="0" numbertype="1" negative="False" hasspace="False" sourcevalue="2.93" unitname="m"><span lang="EN-US">2.93m</span></chmetcnv><span lang="EN-US">/s,34.3mmHg. </span></font></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">超声提示:</span><span lang="EN-US"><font face="Times New Roman">1</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">、大血管转位(</span><span lang="EN-US"><font face="Times New Roman">SDD</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">)</span><span lang="EN-US"><font face="Times New Roman"> 2</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">、室间隔缺损</span><font face="Times New Roman">
( T4 ^  ]! X3 V% \% q8 ?- E6 c                </font><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">室水平双向分流</span><span lang="EN-US"><font face="Times New Roman">3</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">、肺动脉狭窄。</span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">AO 12</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">MPA 9</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">LPA 6 </font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><font face="Times New Roman">RPA 6</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US"><p><font face="Times New Roman">&nbsp;</font></p></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">医院建议满</span><span lang="EN-US"><font face="Times New Roman">3</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">月后需做手术治疗同时做三种手术</span><span lang="EN-US"><font face="Times New Roman">,</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">医生说可能手术能一次成功也可能需做两次手术,费用</span><span lang="EN-US"><font face="Times New Roman">5-10</font></span><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">万元。本人现向上海儿童医学中心心胸外科的先心论坛求助:向我儿这样严重的先心可否治愈?治愈后是何种的生存状态。因我是家住南京想问如何在上海儿童医学中心心胸外科求医的流程?是否要先带小儿的心脏超声报告到海儿童医学中心看门诊?</span><font face="Times New Roman">0 x/ a; v' m) l& e, ?2 B
                </font></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">手术治疗方案、还有入院治疗需多长时间?</span><font face="Times New Roman">
* H3 J4 p; a. R- Y. H% \8 r8 C. [$ [                </font><span style="FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">希望知情者给与答复谢谢!!!</span></p>
     
发表于 2006-11-7 20:35:54 | 显示全部楼层
您好:<br/>&nbsp;&nbsp;&nbsp; 这种疾病我们目前可以采用一次根治的方法,即translocation手术,但具体情况还要看进一步的检查结果;<br/>&nbsp;&nbsp;&nbsp; 治疗流程请看我们的主力网站:<a href="http://www.ibabyheart.com">www.ibabyheart.com</a>;
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发表于 2006-11-10 04:52:24 | 显示全部楼层
我的孩子和你的孩子一样情况,我的qq是34233261,我们可以多多交流。
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