救救孩子吧！

求救

<p>我朋友小孩不到一岁，瘦小，郑州医科大学附属医院诊断为：先天性1.二尖瓣狭窄2。室间隔缺损3.跻动脉高压。医生说二尖瓣狭窄目前没法治疗，要等到15岁才能手术。可是他现在已经比较严重，估计只能活到3-4岁。天啊，这不是给孩子判了死刑么！朋友生活在农村，好不容易才凑够了手术费，满怀希望的到了省城又遭此打击，痛不欲生！大家帮帮他啊！</p><p>急切希望知道真的有那么严重么？</p><p><font size="2"><font face="Verdana">1</font><span class="tpccontent1"><span style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: 宋体; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;; mso-ascii-font-family: verdana; mso-hansi-font-family: verdana;;;">、孩子这种情况能治好吗？能完全治愈么？有没有后遗症？</span></span></font><span lang="EN-US" style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: verdana; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;mso-fareast-font-family:宋体;;;;"><br/></span><span style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: verdana; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;mso-fareast-font-family:宋体;;;;"><span>&nbsp;2</span></span><span class="tpccontent1"><span style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: 宋体; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;; mso-ascii-font-family: verdana; mso-hansi-font-family: verdana;;;">、手术的最佳时期是多大的时候？</span></span><span lang="EN-US" style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: verdana; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;mso-fareast-font-family:宋体;;;;"><br/><span class="tpccontent1">&nbsp;3</span></span><span class="tpccontent1"><span style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: 宋体; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;; mso-ascii-font-family: verdana; mso-hansi-font-family: verdana;;;">、治疗时间需要多久？</span></span></p><p><span class="tpccontent1"><span style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: 宋体; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;; mso-ascii-font-family: verdana; mso-hansi-font-family: verdana;;;">4。治疗要多少钱？（超过5万我估计他就承受不了了）是不是该放弃？（：</span></span></p><p><span class="tpccontent1"><span style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: 宋体; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;; mso-ascii-font-family: verdana; mso-hansi-font-family: verdana;;;"><font face="Arial">5.儿童医院那个医生做这个治疗最好？</font></span></span></p><p><span class="tpccontent1"><span style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: 宋体; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;; mso-ascii-font-family: verdana; mso-hansi-font-family: verdana;;;"><font face="Arial">急啊，先谢了</font></span></span><span lang="EN-US" style="FONT-SIZE: 10pt; COLOR: black; FONT-FAMILY: verdana; mso-bidi-font-family: 'mso-font-kerning:1.0pt;mso-ansi-language:en-us;mso-fareast-language:zh-cn;mso-bidi-language:ar-sa;mso-fareast-font-family:宋体;;;;"></span></p><br/><br/>
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陆医生

请提供详细超声资料。

求救

<p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">谢谢admin的关注，以下是彩超报告，有些看不大清楚，基本上是这样。</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman"></font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">孩子年龄14个月，男</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">临床诊断：VSD&nbsp; PH</font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">2DE</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">：心脏位置、房室连接一致，肺动脉汇入左房，房间隔完整，室间隔缺损</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">VSD:<chmetcnv unitname="mm" sourcevalue="15.2" hasspace="False" negative="False" numbertype="1" tcsc="0" wst="on"></chmetcnv><chmetcnv></chmetcnv><chmetcnv></chmetcnv><chmetcnv></chmetcnv>15.2mm<chmetcnv></chmetcnv><chmetcnv></chmetcnv><chmetcnv></chmetcnv><chmetcnv></chmetcnv></font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">（膜周融合形）（</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">9</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">（或者是</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">6</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">，看不清楚）型）（左自右分流速约</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">1.7mls</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">），主动脉宽约</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">15.6<span style="mso-spacerun: yes;">&nbsp; </span>LA</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">：</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">16.0 </font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">主动脉（从剑突下切面看）骑跨室间隔，骑跨率小于</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">50</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">％，肺动脉总干（或者是总长，看不清）约</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">16.3</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">－</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">LPA 9.3 /RPA 8.6 </font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">，二尖瓣瓣环约</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">13.9</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">，二尖瓣瓣叶回声增厚，返光增强，开放活动受限，三尖瓣瓣环约</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">15</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">，开放活动可见，左位主动脉方，未见动脉导管开放显示，左房增大明显，室壁稍增厚。</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><p></p></span></p><p></p><p></p><p></p><p></p><p></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><p><font face="Times New Roman">&nbsp;</font></p></span></p><p><font face="Times New Roman">&nbsp;</font></p><p></p><p><font face="Times New Roman">&nbsp;</font></p><p></p><p><font face="Times New Roman">&nbsp;</font></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">PW.AAO:1.2<span style="mso-spacerun: yes;">&nbsp; </span>DAO:1.3<span style="mso-spacerun: yes;">&nbsp; </span>MPA:1.3<span style="mso-spacerun: yes;">&nbsp; </span>MV(</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">或者</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">NW):2.21<p></p></font></span></p><p></p><p></p><p></p><p></p><p></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">TV:0.95<span style="mso-spacerun: yes;">&nbsp; </span>VSD </font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">左向右分流速约</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">1.7mls</font></span></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman"></font></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">CDF2:MR(-)<span style="mso-spacerun: yes;">&nbsp;&nbsp;&nbsp; </span>A2(-)<p></p></font></span></p><p></p><p></p><p></p><p></p><p></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">TR(+)</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">返流速约</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">2.38mls<span style="mso-spacerun: yes;">&nbsp; </span>P2(+)</font></span><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">返流速约</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">3.62mls</font></span></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;"></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">其它：</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><font face="Times New Roman">WEF:83%<span style="mso-spacerun: yes;">&nbsp; </span>WFS:49%<span style="mso-spacerun: yes;">&nbsp; </span>WDP:19.5<span style="mso-spacerun: yes;">&nbsp; </span>WPS:9.9</font></span></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;"></span></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt;"><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">提示：</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><p></p></span></p><p></p><p></p><p></p><p></p><p></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt; TEXT-INDENT: 31.5pt;"><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">室间隔缺损</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><p></p></span></p><p></p><p></p><p></p><p></p><p></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt; TEXT-INDENT: 31.5pt;"><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">肺动脉高压</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><p></p></span></p><p></p><p></p><p></p><p></p><p></p><p></p><p class="MsoNormal" style="MARGIN: 0cm 0cm 0pt; TEXT-INDENT: 31.5pt;"><span style="FONT-SIZE: 16pt; FONT-FAMILY: 宋体; mso-ascii-font-family: &quot;Times New Roman&quot;; mso-hansi-font-family: &quot;Times New Roman&quot;;">二尖瓣狭窄</span><span lang="EN-US" style="FONT-SIZE: 16pt;"><p></p></span></p><p></p><p></p><p></p><p></p><p></p><p></p><br/><br/>
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陆医生

您好；<br/>&nbsp;&nbsp;&nbsp; 我不大相信你们那里的诊断，因为这种疾病组合方式很少见，建议到我中心明确诊断。

求救

<p>谢谢回复，我已经把你的意见转告给他了，我还想想问一下：</p><p>1.如果单纯是二尖瓣狭窄，他这个年龄目前可以手术么？</p><p>2.如果我们这里的诊断正确的话，他还有救么？如果费用太高，是不是该放弃？</p>

陆医生

单纯二尖瓣狭窄很少见，目前治疗只能整形，远期来看，可能还是不可避免的要换瓣。